What Comes Next After an Endometrial Cancer Diagnosis

 

Returning to normal after an endometrial cancer diagnosis—whether during treatment or in remission—can be challenging. It’s natural to feel uncertain about what comes next but there are steps you can take to try to bring more brightness to your days. Living with endometrial cancer can be challenging, but taking time to reflect on your needs and set personal goals may help provide motivation.

Make Healthy Choices

Moving your body, maintaining a healthy diet, staying hydrated, and getting rest is important. Work with your doctor to determine what's appropriate for you.

Reach Out

You don’t have to go through this experience alone. Develop a support team that can help you along the way by reaching out to:

  • Professional help (e.g., a counselor or therapist)
  • Family and friends
  • Other people with cancer (through online forums, gynecologic cancer events, etc.)
  • Endometrial or gynecologic cancer advocacy groups, which can provide:
    • Emotional support
    • Education for you and your caregiver(s)
    • Financial assistance
    • Connection to other people living with gynecologic cancer

If you need support figuring out how to approach conversations about your diagnosis with loved ones, visit the Gynecologic Cancers, Candidly page.

Honor Your Feelings

Living with endometrial cancer can make you feel a variety of emotions: frustration, sadness, guilt, and exhaustion, to name a few. Give yourself permission to feel your emotions.

  • Remember that feelings don’t define who you are. 
  • Pay close attention to your feelings and recognize what triggers them. This will help you better understand these feelings should they arise again.
  • Make sure to reach out to your support system. Stay in close contact with your support group, caregivers, and doctor and let them know how you’re feeling.

Practice Resilience

This is not an easy thing to do, by any means. Taking steps to find your new normal after experiencing a setback or tough situation is invaluable when facing gynecologic cancer. 

  • When you’re feeling down or when things don’t go as planned, it’s important to let yourself feel whatever emotions arise.
  • After you’ve honored your feelings, it’s equally important to try to get back into a routine.
  • As you are doing so, try to stay present and hopeful. Creating connections is a great way to keep yourself in the moment.
  • If it’s helpful, make lists and/or action plans to organize your days.

Hear from Real Endometrial Cancer Patients

"I started referring to my chemo days as 'Spa Days,' thanks to the wonderful nurses who were caring for me. I kept up my routine as best I could—daily walks with my dog Maggie helped me feel grounded and normal. That determination to stay present and empowered led me to want to help others going through the same thing. By sharing my story, I hope to raise awareness so that other women who notice persistent changes in their health will see their doctor early and get the care they need. No one should face this alone." – Cheryl, endometrial cancer survivor, 70 years old

"I had a great support system, and they did everything that they knew how to do to support me, but there were still a lot of times where I felt very isolated and very "other." Typically, people my age are worried about getting married, having children, buying a home, but my biggest concerns were whether or not my scans were going to be clear. I wound up using social media as a way to "speak into the void" and share my experience. I never expected to gain a following, but it's been very rewarding for me to connect with others who have gone through this experience, and know that I am not alone." – Casey, endometrial cancer survivor, 30 years old

Cheryl and Casey are paid spokespeople for GSK’s Our Way Forward. These are their personal patient experiences, and yours may be different.

How to Talk About Endometrial Cancer

 

Whether you are living with endometrial cancer or caring for someone who is, the guides below can help kick off meaningful discussions.

Endometrial Cancer Patient Discussion Guide PDF image

Want more help starting discussions about endometrial cancer with your healthcare team?

Endometrial Cancer Patient Discussion Guide
Gynecologic Cancer Caregiver Discussion Guide PDF image

For caregivers, here’s a helpful resource to support your loved one with endometrial cancer.

Gynecologic Cancer Caregiver Discussion Guide
Approximately 17 percent of endometrial cancers come back, or recur, the majority of them during the first two years after treatment

What Should You Know About Endometrial Cancer Recurrence?

For many people with endometrial cancer, treatment may eliminate or destroy the cancer. However, there is a possibility that it can come back, or recur, after it’s been treated. Endometrial cancer can come back in the uterus, pelvis, lymph nodes, or other parts of the body.

 

The possibility of your endometrial cancer returning can be scary. You may feel anxious or uncertain about what to do next, even if your cancer is currently in remission. Understanding what recurrent endometrial cancer means is an important step in choosing the right treatment plan with your healthcare team and managing the emotions that come along with it.


After treatment, regular screening is recommended to detect recurrence. Talk to your healthcare team about routine gynecologic care and pelvic exams.

 

Learn Common Gynecologic Terms

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